Comprehensive handbook for developing a bladder cancer cystectomy database.

Lotan Y, Amiel G, Boorjian SA, Clark PE, Droller M, Gingrich JR, Guzzo TJ, Inman BA, Kamat AM, Karsh L, Nielsen ME, Smith ND, Shariat SF, Svatek RS, Taylor JM, Bladder Cancer Think Tank, Bladder Cancer Advocacy Network
Urol Oncol. 2013 31 (6): 812-26

PMID: 22056403 · DOI:10.1016/j.urolonc.2011.09.004

OBJECTIVE - In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection.

METHODS - Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group.

RESULTS - Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements.

CONCLUSIONS - Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.

Copyright © 2013 Elsevier Inc. All rights reserved.

MeSH Terms (12)

Comorbidity Cystectomy Databases, Factual Data Collection Diagnostic Imaging Humans Medical Oncology Neoplasm Staging Quality of Life Treatment Outcome Urinary Bladder Neoplasms Urology

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